Curricular unit: Introduction to Medicine II Adviser: Ricardo João Cruz Correia Class 17. 1st year. 2010/2011 2 • General government’s objective: centralization of all medical records in a single country-wide electronic sharing system • Related projects being carried out: – epSOS (1) – the European-wide project to patient data interchange among countries, particularly focused on emergency situations – RSE (2) – the Portuguese program for a centralized patient records database and sharing system (1) http://www.epsos.eu/ (2) http://www.portaldasaude.pt/portal/conteudos/a+saude+em+portugal/politica+da+saude/discussao/arquivo/registo+electronico.htm 3 • One known evaluation study(3) about the importance of a regional electronic health information exchange system: – Based on questionnaires answered by New York ER Doctors; Conclusion developing a patient record database is important. – Possible bias due to the distribution method used. • In Portugal: no released investigations about the subject. (3) Shapiro JS, Kannry J, Kushniruk AW, Kuperman G. Emergency Physicians’ Perceptions of Health Information Exchange. J Am Med Inform Assoc. 2007 Nov–Dec; 14(6) :700-705 4 1 2 3 • Scarcity of studies/evaluations proving the viability of the projects and low quality of the available information; • Reduced query to specialists working in the fields that the projects would potencially give benefit to; • Ambiguous justifications by the entities working on the projects for their implementation; 5 • Main question: Would the health professionals find the existence of an electronic system sharing medical information among health institutions useful? • Objectives/Aims: – Gathering opinions from health professionals about the usefulness of this kind of systems; – Determining which type of information and type of institution whose information health professionals would find the most important to have access to; – Comparing results obtained in this project to those of Shapiro’s study. 6 7 Doctors Nurses TARGET POPULATION Hospital S. João Hospitals Hospital Pedro Hispano (data share system implemented) SAMPLING LOCATIONS Hospital Cuf Porto Departments’ selection criteria: addition of variables of (potential) interest DEPARTMENTS Emergency department Internal medicine General surgery Pediatrics Otorhinolaryngology (institutions chosen for convenience) Primary Care Health Centers of ARS Norte – doctors of primary care DATA COLLECTING METHODS: survey (paper and online) 8 •Cross-sectional study – Pointed to a specific moment in time •Observational study – No intervention 9 9 doctors 4 nurses Main critics to the survey: •Nurses, some doctors: asking for percentages with no sense in some questions; gradatory scale •Difficulties on the comprehension of question 4 (which features would benefit from the system) ; modified •Several suggestions for the answer of question 6 (which type of information would be the most useful) ; turned into an open question 10 Letters Sent 11 March (after phone conversation) Hand-delivered (after direct conversation) Contents: • Request for Authorization (letter) • Survey • Written Protocol 11 Support in study Disclosure of the survey by e-mail General Practice (GP’s) Doctors MedQuest http://http://newdbserver.med.up.pt/projext/medquest/verprod/index.php?mdl=3&qtr=MTQyNzcxMDUxNDI= 12 Hospital Hospital S. João Department Delivered Emergency department Required written approval : Ethics committee Hospital’s direction Internal medicine X Filled X Hospital Pedro Hispano Delivered Filled Hospital Cuf Porto Delivered X X X X Online Filled X N=46 General surgery Unavailable X X Pediatrics X Lost X X X Otorhinolaryngology X X X X X N=67 13 • Descriptive analysis - using PASW (SPSS) • Comparative analysis – acording to selected variables • Type of health professional: Doctors/ Nurses • Type of institution: Public/ Private institutions • Gender: Female/ Male • Age: Younger/ Older professionals • Survey format: Online/ Printed version 14 15 PAPER Age •Female: 65% •21 – 30: •31 – 40: •41 – 50: •51 – 60: 50% 26% 14% 7% •21 – 30: •31 – 40: •41 – 50: •51 – 60: 20% 20% 11% 48% •Male: 34% ONLINE N=67 N=46 Occupation Gender •Female: 47% •Male: 52% •Doctor: 40% •Nurse: 59% •All primary care doctors 16 Comparative Analysis 1. Com que frequência é que actualmente procura obter informações clínicas sobre os doentes a quem presta cuidados de saúde, de fontes fora da sua instituição de saúde? 12 11 Percentage (%) 10 8 6 5 4 2 2 0 Attempt to get outside clinical information 0-10% of the time Doctors Primary Care (N=46) Doctors Hospital (N=27) Nurses Hospital (N=40) 17 Health Centers Hospitals 2. Se lhe fosse dado um fácil acesso a informação clínica proveniente de fora da sua instituição de saúde, quais as fontes de dados que lhe seriam mais úteis? (Por favor, ordene as seguintes fontes em função da sua utilidade, em que a 1ª é a mais útil e a 4ª é a menos útil. Use cada número apenas uma vez.) Ordem de utilidade Hospitais 1º 2º 3º 4º 1º 2º 3º 4º 60,6% 29,8% 9% 1,5% 69,4% 17,4% 2,4% 4,9% Centros de Saúde Laboratórios de análises e imagiologia Clínicas e/ou consultórios médicos privados 22,7% 40,2% 25,4% 11,7% 12,2% 28,3% 45,2% 14,6% 12,1% 19,4% 41,8% 26,5% 14,3% 47,8% 33,3% 4,9% 4,5% 10,4% 23,9% 60,3% 4,1% 6,5% 19,0% 75,6% 18 Comparative Analysis 3. Qual a proporção de doentes a quem presta cuidados de saúde que beneficiariam, se o acesso à informação clínica proveniente de fora da sua instituição de saúde fosse imediato? 100 100 93 84 Percentage (%) 80 60 75 78 52 Doctors Primary Care (N=46) Doctors Hospital (N=27) 40 Nurses Hospital (N=40) 20 0 >1/2 of patients would benefit if access to outside clinical information were immediate >1/4 of patients would benefit if access to outside clinical informationwere immediate 19 4. Assinale a sua concordância relativamente aos aspectos/instituições que iriam ser beneficiados, caso existisse a possibilidade de obter informação clínica de outras instituições de saúde de maneira rápida e fácil. A forma como presta os cuidados de saúde O seu serviço/departame nto A sua instituição de saúde O Sistema Nacional de Saúde Hospitals Health centers Hospitals Health centers Hospitals Health centers Hospitals Health centers 24,2% 63% 18,5% 54,3% 25,4% 56,5% 35,8% 63% 65,2% 10,6% 34,8% 2,2% 76,9% 4,6% 43,5% - 70,1% 3% 43,5% - 59,7% 1,5% 32,6% 2,2% Discordo Totalmente - - - - - - - 2,2% Sem opinião - - - 2,2% 1,5% - 3% - Concordo Plenamente Concordo Discordo 20 5.Em relação a cada um dos seguintes factores assinale o tipo e grau de efeito que, na sua opinião, iria ter pelo acesso a informação proveniente de outra instituição de saúde. Eficiência (melhor Tempo necessário Número de Meios utilização de para tomar decisões Complementares de Número de erros na recursos) com que sobre os utentes a Diagnostico e prestação de os cuidados de quem presto Terapêutica (MCDT) cuidados de saúde saúde são prestados cuidados de saúde solicitados Piorar muito Piorar Sem alterações Melhorar Melhorar muito Não sei Hospitals Health centers Hospitals Health centers Hospitals Health centers Hospitals Health centers - - - - - - - 2,3% - 9% - 3% 4,3% 3% - 24,6% 18,2% 44,8% 21,7% 52,2% 50% 43,3% 34,8% 45,9% 52,3% 46,3% 78,3% 44,8% 43,5% 53,7% 65,2% 29,5% 27,3% - - - 2,2% - - - - 21 Comparative Analysis 6. Faça uma lista de pelo menos 5 tipos de documentos clínicos que, se disponíveis noutras instituições de saúde, lhe seriam muito úteis na sua prática clínica. 200 180 Percentage (%) 160 140 120 100 DPC 80 NH DH 60 40 20 0 MCDT Clinical history Clinical analysis Imaging exams Discharge reports Current Reports of therapeutics appointments and subspecialties Clinical reports Clinical diary Emergency episodes 22 7 - RSE 7.1 Já alguma vez ouviu falar deste projecto? Doctors Nurses Sim 51.4% 48.6% Não 50.0% 50.0% 23 Comparative Analysis 7 - RSE 7.2 Qual acha que será a utilidade da sua implementação? 90 85 80 Percentage (%) 70 75 69 60 Doctors Primary Care (N=46) 50 Doctors Hospital (N=27) Nurses Hospital (N=40) 40 30 20 10 0 RSE implementation is very useful/indispensable 24 Comparative Analysis 7 - RSE 7.2 Qual acha que será a utilidade da sua implementação? 70% 59% 55% 60% 50% 40% Hospital S. João 27% 27% Hospital Cuf Porto 30% 18% 14% 20% 10% 0% Irrelevante Pouco útil Útil Muito útil Indispensável Hospital S. João vs. Hospital CUF Porto → Public vs. Private 25 Comparative Analysis Results of Shapiro’s survey Results of our survey Response rate: 58% (n=216) Response rate: 26% (Doctors CUF=44) 63% of the doctors said that more than 66% of the doctors said that a lot/all of 1/4 of their patients would benefit from the their patients would benefit from the data data sharing system sharing system 85% said it was difficult to access 48% said they frequently/always search information from external sources for information 56% said that they try to access external 89% said the efficiency of the health care data < than 10% of the times needed would improve/greatly improve if they could access the external data 26 Meeting the objectives: The majority of health professionals believe that a patient record exchange system, particularly RSE in our country’s context, would be very useful or even essential. Hospitals are the most searched sources of external patient data. The medical documents that health professionals would find more useful to obtain are: MCDT Clinical analysis Imaging exams Appointment and subspecialties’ reports Discharge reports . 27 • (1) Welcome to epSOS – a European eHealth Project. In epSOS: Home. Retrieved October 21, 2010, from http://www.epsos.eu/ • (2) Registo de saúde electrónico. In Portal da Saúde. Retrieved October 21, 2010, from http://www.portaldasaude.pt/portal/conteudos/a+saude+em+port ugal/politica+da+saude/discussao/arquivo/registo+electronico.htm • (3) Shapiro JS, Kannry J, Kushniruk AW, Kuperman G. Emergency Physicians’ Perceptions of Health Information Exchange. J Am Med Inform Assoc. 2007 Nov–Dec; 14(6) :700-705 28 29 30 31 32