2012 ANUAL REPORT
BRAZIL: OVER
3 MILLION
MARROW
DONORS
RIO DE JANEIRO
ONCOLOGICAL ATTENTION PLAN
PALLIATIVE CARE UNIT
STRATEGIC PLANNING
www.cancer.org.br
CONTENTS
LETTER TO THE READER
A special year........................................................................................................................ 3
HIGHLIGHTED PROJECTS
Redome: over 3 million donors............................................................................................. 4
Oncological attention tailored for Rio de Janeiro................................................................. 8
Rio will have a model palliative care unit............................................................................ 10
MANAGEMENT
New projects to guarantee the future.................................................................................. 12
Timeline................................................................................................................................ 14
INTERVIEW
Luiz Antonio Santini.............................................................................................................. 16
RESEARCH
Priority on research.............................................................................................................. 18
Innovation and access ......................................................................................................... 20
The results are reaching the bed........................................................................................... 21
MOBILIZATION
Connected campaigns.......................................................................................................... 22
Racing for a worthy cause.................................................................................................... 24
Solidarity that enchants....................................................................................................... 26
SOLIDARITY
Donating made easier.......................................................................................................... 28
Focus on children and youths............................................................................................... 30
BALANCE SHEET
Financial statements............................................................................................................ 33
3
2012 ANNUAL REPORT
CANCER FOUNDATION
“
We need to remain
vigilant, so that
there’s no retreat
and we continue
to cut down on
the percentage of
smokers, currently
around 15%.
LETTER TO THE READER »
A SPECIAL
YEAR
Ever since the Cancer Foundation was created in 1991, all the years have been important ones and
involved a lot of hard work, yet I can say that 2012 was special in our history. Besides the hundreds of
projects related to preventing and controlling cancer, it was a year devoted to our strategic planning.
We conducted detailed work, together with the Dom Cabral Foundation, one of the world’s best
business schools, and started expansion projects indicated in our planning. Among these, we highlight the Oncological Attention Program of the State of Rio de Janeiro and the finishing touches for
construction of a Hospice – Palliative Care Unit in the Vargem Pequena district towards the west of the
City of Rio de Janeiro.
It was a year in which Law No. 12715/12 was signed by the Brazilian President, thus now granting tax
incentives for individuals and companies who make donations related to the prevention of and fight
against cancer. With its regulation in April of 2013, a new source of funding has been opened up.
We maintained our spirit of fighting against the tobacco industry, which engages in trickery in
its attempt to skirt around the advances over the course of the more than 20 years we have been working, such as the prohibition against smoking chambers, advertising at sales outlets and additives in
cigarettes. At the end of 2012 they tried, by filing for a preliminary injunction, to prevent the prohibition against flavors and aromas in tobacco products, used to make them more palatable, especially for
youths who experiment them for the first time. But they did not get their way.
Tobacco usage is a chemical dependency, caused by nicotine. Smokers who want to quit need
help. The industry uses perverted tactics to avoid losing their customers, as well of course as to re-
plenish the market with new smokers. For this reason, we need to remain vigilant, so that there’s no
retreat and we continue to cut down on the percentage of smokers, currently around 15%. After all,
we have achieved the feat of being a country with more ex-smokers than smokers.
Before inviting you to read the following pages of this report, where you can learn details of our
principal accomplishments in 2012, I want to thank everyone who has contributed to the Cancer Foun-
dation. From the smallest to the biggest donation, from the slightest to the greatest sponsorship,
from the commitment of employees to the efforts of volunteers: all are important and fundamental.
Companies, artists, people who wish to remain anonymous, long-time friends of the institution and
those who have just joined cause with us: Thank you!
Marcos Moraes
Chairman of the Board of Trustees of the Cancer Foundation
2012 ANNUAL REPORT
CANCER FOUNDATION
HIGHLIGHTED PROJECTS »
REDOME:
OVER 3 MILLION
DONORS
Brazil is among the countries with the largest
number of people registered as bone marrow donors.
The National Register of Bone Marrow Donors (Redome)
nors registered on Redome to patients in other countries.
and is the third largest in the world. The strengthening of
processes and flows relating to national and international
Network of Public Umbilical Cord Blood Banks (BrasilCord
ister in the world. Since the scientific part is already well
wound up 2012 with more than 3 million registered donors
this register, plus the successful expansion of the Brazilian
Network), which is well underway, and the signing in Sep-
tember of 2012 of a new partnership agreement between
“Our goal is to invest even more in the efficiency of the
searches and to Redome. Brazil can have the biggest regresolved, we are evaluating the logistical capacity that we
need to have, chiefly with respect to the sending of ge-
the Ministry of Health, the National Cancer Institute of
netic material abroad, which is what generates funds for
to Seek, Gather and Transport Stem Cells for Non-Kin Bone
of the Foundation’s Board of Directors, Peter Rodenbeck.
Brazil (INCA) and the Cancer Foundation for the Program
Marrow Transplants in Brazil are all evidence of the good
us to make other investments”, comments the President
The investment in Redome includes the assignment
work that is being undertaken by the parties involved.
of Foundation employee Alexandre Almada, a biologist
of marrow transplants with non-kin donors carried out
the Register. He is responsible for management of the
This efficiency is reflected in the rise in the number
in the nation that were identified by Redome. Last year
248 transplants were carried out, fully 25% more than in
2011. At present, only around 20% of the transplants are
conducted with donors located on international registers.
There are foreign exchange savings earned with this. An-
other relevant aspect is that the good functioning of this
service also propels the remittance of material from do-
6
who specializes in immunology, to serve as manager of
processes of the program for funding, seeking, picking
up and transporting hematopoietic stem cells overseas.
These cells are capable of producing the fundamental elements of the blood that are essential for bone marrow
transplants. Almada also takes care of the logistics of the
trips that need to be made by voluntary donors for non-kin
bone marrow transplants in Brazil.
IN THOUSANDS OF PARTICIPANTS
IN NUMBER OF PARTICIPANTS
137
136
132
2008
2009
94
941
2006
556
301
135
2005
2007
111
1.373
1.856
167
198
248
3.017
Rereme
NATIONAL REGISTER OF
BONE MARROW RECIPIENTS
2.667
Redome
NATIONAL REGISTER OF VOLUNTEER
BONE MARROW DONORS
2007
2008
2009
2010
2011
2012
2005
2006
2010
2011
2012
NON-KIN TRANSPLANTS CARRIED
OUT IN BRAZILIAN PATIENTS
69
135
14
99
IN NUMBER OF PARTICIPANTS
11
REDOME
96
BRASILCORD
13
Transplants
carried out with
umbilical cord and
placenta blood of
Brazilian donors
75
52
INTERNACIONAL
30
45
36
7
12
56
60
58
11
30
46
71
45
18
118
53
Transplants carried
out with bone
marrow blood or
peripheral blood of
Brazilian donors
7
27
1
6
2
22
33
21
1
Transplants
carried out with
bone marrow blood
and umbilical cord
and placenta blood
of foreigndonors
2000
2001
2002
2003
2004
2005
2006
2007
2008
2009
2010
2011
2012
7
2012 ANNUAL REPORT
CANCER FOUNDATION
BRASILCORD NETWORK EXPANDS BANKS
In September of 2012 the Brazilian Network of
sion by the National Cancer Institute of Brazil
Network) got the green light for its third ex-
ing, the network will have 17 banks and total
Public Umbilical Cord Blood Banks (BrasilCord
pansion phase approved by the Brazilian Social
& Economic Development Bank (BNDES). This
phase involves investing R$ 23 million to build
storage capacity for 80 thousand units of umbilical cord blood.
The BrasilCord Network units test, process,
four umbilical cord blood banks – in Manaus
store and release stem cells in order to perform
State – MA), Campo Grande (Mato Grosso do
not have a kin donor, which is the situation of
(Amazon State – AM), São Luís (Maranhão
Sul State – MS) and Salvador (Bahia State – BA).
The timetable for implementation is slated to
last 38 months.
The project for expanding the BrasilCord
Network, which began in 2006, is managed by
the Cancer Foundation, with technical supervi-
BrasilCord Network
17 Umbilical Cord Blood Banks
Total storage capacity: 80,000 units
IMPLEMENTED
BEING IMPLEMENTED
ON THE DRAWING BOARD
8
(INCA). When these four new units are operat-
bone marrow transplants for people who do
roughly a thousand patients in Brazil. Created
in 2004, the network is supplied with genetic
material from all the country’s regions. The goal
is that these cord units, added to voluntary marrow donors, will be able to meet all the demand
for Brazil’s bone marrow transplants.
NEW LABORATORY SPEEDS UP EXAMS
Another milestone related to the BrasilCord Network in 2012
was the inauguration in July of new installations and equipment for INCA’s Immunology Laboratory at Cancer Hospital II, located in the Santo Cristo district near the Port area
close to downtown Rio de Janeiro. Renovation of the laboratory was part of the second phase of network expansion
and benefitted from funds from the Federal Government
and BNDES, for a total amount of R$ 2.7 million. The Cancer
Foundation handled the management side, all the way from
the master architectural project to the start-up of activities.
The new installations and equipment of the immunol-
ogy laboratory expand local capacity for identifying marrow donors, being a major step forward in the search for
compatibility for patients awaiting transplants.
According to the director of INCA’s Bone Marrow Trans-
plant Center (Cemo), Luis Fernando Bouzas, it has been
possible to speed up exams, modernize techniques and
even for material to be forwarded for national certification
by the Brazilian Histocompatibility Association (ABH) and
by international associations. “This way, we will be able to
avoid sending material for tests abroad and meet the needs
Umbilical cord and placenta blood sample
of countries that do not have certified laboratories for these
more specific and sophisticated exams,” Bouzas explains.
BioArquive – Cryopreservation Tank
Flávio Braga, superviser of the INCA Umbilical Cord Blood Bank
9
2012 ANNUAL REPORT
CANCER FOUNDATION
HIGHLIGHTED PROJECTS »
ONCOLOGICAL
ATTENTION TAILORED
FOR RIO DE JANEIRO
Rio de Janeiro will be the first state in Brazil to have an Oncological Attention Plan. The project was ordered by the
State Health Secretariat and is being tailored by the Cancer
Foundation to complement the actions, programs and proj-
ects needed for implementation of the National Oncological
Attention Policy in the State of Rio de Janeiro as regards all
aspects relating to Promotion, Prevention, Diagnosis, Treatment, Rehabilitation and Palliative Care. This is being done
by the Foundation in conjunction with the Federal Ministry
of Health and the Health Secretariats of the state’s municipalities, according to the directives of the National Cancer
Institute of Brazil (INCA).
Ever since the beginning of 2013, a team of 13 profession-
als has been involved in drawing up the plan, the project for
which was developed over the course of 2012. Among these
professionals are doctors who are specialists in oncology in
the clinical, radiotherapy, surgical, palliative care and epidemiology areas, as well as engineers to take care of the logis-
tical processes. At the end of their work, later this year, the
plan will be concluded with organized models for access to
diagnoses and treatments, with targets and indicators to follow up on and appraise the results. The following interview
is with Sérgio Côrtes, Rio de Janeiro State Health Secretary.
10
Part of the group of professionals that has drawn up
the Oncological Attention Plan for the State of Rio de
Janeiro. In front, from the left: Vânia Cardoso Leão de
Magalhães, Alfredo Scaff and Reynaldo Tavares. At
the back, from the left: Jamil Muçalam Saab, Altino
Leitão and José Eduardo Castro. Also participating
in the Project are Carlos Eduardo Almeida, Carlos
Frederico de Lima, Celso Rotstein, Claudia Naylor,
Felipe Treistman and Leonardo Luiz Lima Navarro.
“
This is a pioneering
initiative in Brazil and the
idea is for the plan to serve
as a guide for the
organization of actions for
prevention, promotion,
health education,
diagnosis, treatment and
pharmaceutical assistance.
What was the reason for choosing the Cancer
Foundation to draw up the State’s Oncological
Attention Plan?
The Foundation has expertise in the area of oncology, having supported INCA for decades now in the formulation of
proposals and solutions for the development of oncological
attention in the State of Rio de Janeiro and in the nation.
Sérgio Côrtes
What determined the need for a specific oncological
attention plan?
Rio de Janeiro has an epidemiological, demographic and
preventive gynecological, prostrate and skin, among other
a plan drawn up for this area. Among the factors that have
sic attention units of the municipal prefectures. The idea
sanitation profile that makes it fundamental for us to have
resulted in the rise in suspect cases are the aging of our pop-
ulation, the growth of chronic-degenerative diseases and
the population’s lifestyle.
Is there a similar plan in the country?
This is a pioneering initiative in Brazil and the idea is for
types of cancer, that are carried out or requested in the bais to work on the geographic distribution of the services,
facilitating access in the state’s nine regions.
The Cancer Foundation is going to build a palliative
care unit in Vargem Pequena. What do you think of
the initiative?
the plan to serve as a guide for the organization of actions
The project for the Hospice – Palliative Care Unit is con-
treatment and pharmaceutical assistance.
experiment in some countries, such as England. It in-
for prevention, promotion, health education, diagnosis,
What is going to change in relation to the services
offered at present?
With these actions, we are going to decrease the time between carrying out the diagnosis and beginning the treatment, increasing the chances of cure and control of the
disease. Besides the education policies that help change
habits linked to certain types of cancer, such as tobacco,
the plan is going to work with practices of actively seek-
ing out specific population age brackets, such as through
secrated and already exists as an extremely successful
volves a place where the patient and family receive special cares, when treatment possibilities are exhausted.
The health teams have the mission of supporting and
providing comfort for patients and their kinfolk at dif-
ficult moments in the evolution of the disease. The
State Health Secretariat is proud to support this project,
which involves an innovative concept in terms of terminal disease care practices. We will have a model to be
studied and reproduced throughout the country, adapted to different local cultural and social realities.
11
2012 ANNUAL
relatório
anual
REPORT
2012
CANCER FOUNDATION
fundação
do Câncer
Design for the facade of the palliative care unit in Vargem Pequena
HIGHLIGHTED PROJECTS »
RIO WILL HAVE A
MODEL PALLIATIVE
CARE UNIT
12
way with the State Health Department
light building, virtually all on a single
the functioning of the unit, which
welcoming place that brings peace to
for a potential partnership for costing
will be ready in September of 2014.
The hospice concept is that of an
tient and their family, based on the
emergency service, besides home
ing. The objective is to palliate the
suffering of patients in the advanced
and rest for the caregiver, generally a
family member.
“We’re not talking about a hospital
The ambience in a hospice is of the
utmost importance and has to include
creative use of space, lighting, furniture and external environment with
nature within reach of their senses,”
explains oncologist Dr. Moraes.
Architect Carla Juaçaba, who de-
the land are “the coordinates” for the
Trustees, Dr. Marcos Moraes, Hu-
guette guaranteed with her noble gesture the purchase of the land and the
construction of the palliative care center. Negotiations are presently under-
mand for palliative care as a result
of cancer in a population that now
numbers 600 thousand.
At present the City of Rio de Ja-
in 1998 with support from the Cancer
fessionals, patients and their kinfolk.
Dominguez, who died in 2002.
A former patient of the Chairman
work. It is scaled to meet the de-
patient-care courses that involve pro-
signed the project, reports that the
of the Cancer Foundation’s Board of
integrated care and research net-
neiro has a palliative care service at
R$ 7 million that was made by Ms.
Huguette Pouchot Lermans de Fraga
for implementation in other areas
here, but rather a center with many
activities: get-along meetings, mu sic,
sible thanks to a donation of around
This unit is characterized as a pi-
of the state; it may even become an
tation, social and emotional support
of the Cancer Foundation, made pos-
getting about.
Besides providing care right through
ted for control of symptoms, rehabili-
Rio de Janeiro. This is an old project
care for patients with difficulties in
lot project that may serve as a basis
to the end of life, patients are admit-
ters in the Vargem Pequena district of
feature outpatient, internment and
stages of their disease who can no
longer respond to curative treatment.
measuring 309 thousand square me-
Even though it is not exactly a
hospital unit, it will nonetheless
community and on a specific build-
in Brazil is being built on a plot of land
the patients and their families.”
organization whose attention model
is aimed at providing care for the pa-
The first Hospice – Palliative Care Unit
plane. The objective is for it to be a
Cancer Hospital IV, which was created
Foundation, and initially termed the
Center for Oncological Therapeutic
Support.
The unit of the National
Cancer Institute of Brazil (INCA) func-
tions in the northern zone district of
Vila Isabel and serves around 1,100 patients per month, with an average of
300 patients being attended at home.
“In truth, the new palliative care
hundred-year-old trees that occupy
unit is a continuity of the work be-
building that will take up an area
tant for us to have HC IV, but the
measuring 3.5 thousand square me-
ters: “The trees design the entrance
way and set off the empty spaces in
the project, which are small internal
gardens. All the rooms and ambienc-
es are oriented to these gardens. It is a
gun over 10 years ago. It is impor-
hospice concept goes much further.
Installations set up in a green area,
especially designed for this purpose,
will provide more tranquility and
comfort for patients and kinfolk,”
Dr. Moraes comments.
13
2012 ANNUAL REPORT
CANCER FOUNDATION
MANAGEMENT »
NEW PROJECTS
TO GUARANTEE
THE FUTURE
The enthusiastic group that participated in the Foundation’s Strategic Planning
14
“
The projects are
complex and demand
constant follow-up,
revision and appraisal.
We have to handle the
management of these
projects, develop actions
for mobilization and
consciousness-raising
of society and work
hard to obtain funding.
Planning the future of the Cancer Foundation
Promoting strategic actions to con-
Oncological Attention Plan; manage-
but over the course of time the or-
ciety.
Marrow Donors (Redome); expansion
“A new operational format for the
trol cancer in order to benefit so-
Being recognized as an in-
novative institution in research,
management and dissemination of
cancer control know-how in order to
benefit society. These, respectively,
are the mission and vision of the
ment of the National Register of Bone
of the BrasilCord network; and implementation and management of a Pal-
liative Care network in the State of
Rio de Janeiro.
For the President of the Cancer
Cancer Foundation, as defined by a
Foundation’s Board of Directors, Pe-
that participated in the process for
ning exercise demanded considerable
group of 13 professionals* in the area
drawing up the institution’s Strate-
gic Planning between January and
March of 2012.
A total of 11 meeting were held on
Saturday mornings and afternoons
to discuss and define the Cancer
Foundation’s activities for the next
five years, with consultants from
the Dom Cabral Foundation serving
as facilitators.
At first sight, the summary of
the mission and vision may not give
us a full idea of how much work is
ter Rodenbeck, the Strategic Plan-
effort and involvement of the team,
and the handling of the projects over
the course of 2012 showed that the in-
stitution is on the right path to meet
Foundation was already underway
and the Strategic Planning exercise
confirmed the new directives and
priorities to ensure us stability. The
expansion and the opening up of
new fronts of activity are a natural
consequence. We have 22 years of
experience that should be reverted
to new partnerships oriented to the
prevention and control of cancer,”
Rodenbeck states.
Participating in the regular work-
the established goals: “The projects
ing group for the Foundation’s Strate-
follow-up, revision and appraisal.
aury de Azevedo, Ana Novaes, Carlos
are complex and demand constant
We have to handle the management
of these projects, develop actions
for mobilization and consciousness-
raising of society and work hard to
obtain funding.”
For many years, the main role of
required for them to reflect reality.
the Cancer Foundation, created in
among them the Rio de Janeiro State
Cancer Institute of Brazil (INCA),
The task includes dozens of projects,
ganization expanded its activities.
1991, was to support the National
gic Planning were Altino Leitão, AmEduardo Almeida, Carlos Gil Ferreira,
Jorge Alexandre Cruz, José Eduardo
Almeida, Luis Fernando Bouzas, Luiz
Maltoni, Luiz Antonio Santini, Marcos Moraes, Peter Rodenbeck and Reinhard Braun. Participants invited to
the last process encounter were An-
tenor Barros Leal, Irlau Machado and
Sérgio Côrtes.
15
relatório anual 2012
fundação do Câncer
TIMELINE
1995
1991
Creation of the Cancer
Foundation.
1992
The Cancer Foundation
obtains the titles of
State Public Utility
granted by the
Secretary of Justice and
the Interior of the State
of Rio de Janeiro and
Provider of Municipal
Public Utility Services
by the Office of the
Major of the City of Rio
de Janeiro.
Agreement signed
with the Federal
Government, through
the good offices of the
Ministry of Health and
with the participation
of INCA, with a view
to mutual technical
and scientific
cooperation in cancer
research and control.
16
Recognized as a Federal
1993
Acceptance of the
Cancer Foundation
as an affiliate of the
Brazilian Association of
Philanthropic AntiCancer Institutions
Public Utility by the
President of Brazil and
obtains exemption
from employer’s
contribution to Social
Agreement signed
between INCA and the
1994
through the good
National Council
for Scientific &
Technological
Development (CNPq),
for importation with
the benefits granted by
Law No. 8.010/90.
Certified as a
Philanthropic
Institution by the
National Social
Assistance Council
(CNAS) and as a
Municipal Public
Utility by the Rio de
Janeiro City Council.
The Cancer Foundation
makes it feasible for the
Qualivida health care
plan to be available for
all INCA employees.
Security (INSS).
(ABIFCC).
Certified by the
1997
Federal Government,
Acquisition of real
estate property for the
Human Resources
Coordinating Office.
offices of the Ministry
1998
of Health, validating
Registration of the
and expanding the
Cancer Foundation
1999
provisions of the
at the Rio de Janeiro
Support for the
Agreement signed on
Municipal Social
Radiotherapy Quality
July 27, 1992.
Assistance Council
Program.
1996
(CMAS), as well as with
Support for the Viva
Women program and
creation of the National
Coordinating Office
the National Suppliers
System (SICAFI) to
perform services for the
Federal Government.
Support to
implementation of the
module for supplies
under the integrated
EMS management
for Control of Tobacco
Beds made available
system at DATASUL for
Usage and Primary
at the Oncologic
better administration
Prevention of Cancer.
Therapeutic Support
of purchases,
Center for providing
consumption
Palliative Care
materials, supplies and
Creation of the
Equity Fund.
for patients.
inventories at INCA.
2009
Commencement of
2005
Agreement signed
between the Cancer
Foundation, INCA
and the Federal
2001
and Stem Cell Storage
(BrasilCord).
in 1995 extended for
Cancer Foundation
with the U.S.’s National
another three years.
Marrow Donor Program
2006
(NMDP).
Assistance Council
(CMAS).
2003
Performance Award
received from the
Miguel Calmon
Institute. The same
award was also granted
in 1996 and 2000.
2000
2004
Registration of the
Support for projects
Regional Council of
Placenta Blood Banks
Participation of
Municipal Social
Chapter of the Brazilian
of Umbilical Cord and
Agreement reached
the Rio de Janeiro
with the Rio de Janeiro
the Brazilian Network
the Health Ministry
representatives on
Cancer Foundation
Government, through
project for expansion of
of the Network for
Oncologic Attention,
Cultural Intervention
and Administrative
Renewal of Agreement
2010
with the Ministry
Construction of five
of Health for
units for the project to
international bone
expand the BrasilCord
marrow and umbilical
network, as well
cord searches.
as remodeling and
2008
purchase of equipment
Service agreement
for another four units.
signed between
2011
INCA and the Cancer
Commemoration of
Foundation.
Foundation’s first
The Ary Frauzinho
Foundation for
Cancer Research &
Control maintains
20 years. Campaign
launched under
the title 20 Years of
Good News.
its legal name in
Beginning of operation
Brazil (Fundação Ary
of four units of the
Medicine (CREMERJ).
Management Quality.
Frauzino para Pesquisa
BrasilCord network
Agreement signed with
Agreement signed
e Controle do Câncer)
with FINEP for
– the umbilical cord
and adopts the Cancer
construction of
blood banks in Belém,
Foundation as its
National Tumor Bank.
Porto Alegre, Curitiba
trademark name.
and Florianópolis.
Ministry of Health to
conduct international
bone marrow searches.
2012
Signing of new
agreement with the
Ministry of Health and
INCA for national and
international bone
marrow searches.
Signing of new
agreement with BNDES
for construction of
another four units of
the BrasilCord network.
Consolidation of the
National Network
for Cancer Clinical
Research and the
National Network for
Development of Cancer
Pharmaceuticals
(Redefac).
Partnership with the
Rio de Janeiro State
Health Secretary’s
Office for development
of the State Cancer
Control Program, as
well as understandings
for maintaining and
equipping the Hospice
– Palliative Care Unit in
Vargem Pequena.
17
2012 ANNUAL REPORT
CANCER FOUNDATION
INTERVIEW – LUIZ ANTONIO SANTINI »
“THE FOUNDATION IS IMPORTANT
IN CONCIOUSNESS-RAISING AND
MOBILIZATION OF SOCIETY”
The Cancer Foundation was created
in 1991 to support the National
Cancer Institute of Brazil (INCA) in
management of the National Cancer
Prevention and Control Policy. For
20 years its activities were primarily
oriented to projects related to
the Institute. Since mid-2011 the
Foundation has dedicated itself to
new partnerships related to cancer
prevention and control. But opening
up new fronts does not mean
breaking away from old ones. In the
following interview, INCA’s General
Director Luiz Antonio Santini talks
about the solid partnership between
the two institutions and about
cancer in Brazil and in the world.
What is the importance of the Foundation’s support
for INCA?
We have always counted on the Foundation for development of cancer prevention and control projects. Not just
in the supply of human resources, which has been a tremendous boost to the Institute, but also in terms of train-
ing personnel, in support for research, in actions to fight
tobacco usage, among others. The entire cancer control
process in which INCA participates is related to joint work
with the Foundation.
What do you think about the Foundation’s opening up
new work fronts?
It’s a natural trend, a manner of financing itself and ob-
taining funds. Both INCA and the Foundation are recon-
structing themselves as institutions. We are discussing
and proposing of a new management model for the Insti-
tute and in this model it will be less dependent upon on
the work force contracted by the Foundation. The partner-
ship model that we have had for many years, especially
based on the issue of human resources, is heading towards
being completely surpassed.This does not mean that it
changes the relationship of INCA with the Foundation
with respect to cancer control in Brazil. What changes es-
sentially is the partnership in relation to the contracting
of human resources to work at the Institute, which is no
longer adequate for the current reality. And this is quite
specific. The Foundation will continue walking hand in
hand with INCA. We are working together on several important projects, such as the National Network for Cancer
18
Clinical Research and the National Network for Develop-
ment of Cancer Pharmaceuticals (Redefac). Besides these
and other common projects, the Foundation is important
in consciousness-raising and mobilization of society.
How is cancer being dealt with at the world-wide level?
In the past five to six years cancer has definitively been
placed on the global agenda, being recognized as a public health problem. This happened because, even with
the inequalities, there has been throughout the entire
world, especially in the developing nations, a change in
the demographic profile. The population is aging and the
increase in certain risk factors, such as tobacco usage, for
instance, has also led to an increase in the number of can-
cer cases. In other words, there has been a demographic
and epidemiological shift. Cancer has begun to take on
greater importance from an epidemiological standpoint
and, besides being one of the main causes of death in the
world, it began tending towards being a chronic disease
that is increasingly more treatable and controllable. Yet
Luiz Antonio Santini
it is also more prevalent. And we have posted advances in
relation to diagnoses and treatments. This happened in a
very short period of time and caused a world-wide move-
What is the estimate for this year?
bly held a special session to discuss non-transmittable
ly 520 thousand new cases of cancer in Brazil. The most
ment regarding this issue. In 2011 the UN General Assem-
For 2013 we are considering an estimate of approximate-
chronic diseases and cancer. The World Health Organi-
common types, besides non-melanoma skin cancers for
zation (WHO) is forecasting roughly 12 million deaths by
the year 2030. This naturally also significantly increases
public health spending all over the world.
And in Brazil?
We have a tremendous challenge ahead of us and we are
working to respond to it. At the session I mentioned Presi-
dent Dilma Rousseff presented the Program for Control of
Uterine Colon and Breast Cancer in Brazil, our main focuses at the moment, with well-defined objectives and goals
and funds already appropriated. I believe it is the biggest
program in the world, in quantitative, qualitative and financial terms. R$4 billion has already been appropriated.
INCA drew up the first steps of this Program and is the Ministry of Health’s partner in managing it. Control of uterine
colon cancer began in the 1970’s and has been enhanced
from year to year to the point where it finally gained this
scale of being a national program with the government’s
seal on it. In short, cancer has become extremely important and the Ministry of Health and INCA have outstanding roles to play in this scenario, with the Cancer Foundation historically being a partner in this process.
both sexes, are prostrate, lung, colon, bowel and stomach
cancer for men; and breast, uterine colon and bowel and
thyroid gland cancer for women. What we have noted is
that, although we have some specific cases of reduction
of incidence and mortality for uterine colon cancer in
some states of Brazil, and lung cancer in men in general,
the mortality figures and incidence of the disease have
increased and are worrisome. Moreover, even though actions to prevent and control the disease have advanced a
great deal in recent years, this trend towards a rise is in
large measure due to what I mentioned: the issue of epidemiological transition, aging of the population and resulting chronicity of the disease. In other words, although
we have advanced considerably in controlling the disease,
there is still a lot of work to be done. It is fundamental for
us to continue acting with agility and priority on the na-
tional public agenda. The partnerships such as those we
have carried out with the Cancer Foundation and the mobilization and support of health-care managers and other
professionals, as well as with civil society, are fundamental. When all is said and done, for us to be successful, everyone needs to participate in some manner.
19
2012 ANNUAL REPORT
CANCER FOUNDATION
Adalberto Vieyra
RESEARCH »
PRIORITY ON
RESEARCH
It has been known for some years now that what we call cancer involves
more than a hundred different diseases that can originate in various
cell types and do not necessarily involve common epidemiologic or
risk factors. Under such circumstances, cancer control is a complex
undertaking that requires considerable support in the research area.
20
“
One of the major contributions
of the UFRJ Oncobiology Program
to advances in fighting cancer
is the bringing together of 300
researchers from different fields
of knowledge from the life sciences
in integrated projects and with
increasing translational interaction 15%.
levels in several countries. Nevertheless, all the solutions
involve greater proximity among basic area researchers,
clinical scientists and assistance professionals.
“Our program is precisely a network that seeks to ap-
proximate basic researchers, clinics and students from
various areas to create an environment that facilitates
the exchange of ideas and techniques. The degree of specialization and complexity of some areas requires that
collaboration has to happen, since it is almost imposVivian Rumjanek
sible for a single group to have all the ‘expertises’ needed
to respond to certain situations,” the scientist explains.
The program has fully 41 lines of research, with dozens
Not for any other reason, one of the pillars of the Cancer
of projects in each one of them – hundreds of studies are
2005 the institution has been a partner of the Oncobiol-
carcinogenesis process (formation of tumors), new possi-
Foundation’s activities is its support for research. Since
ogy Program at Rio de Janeiro Federal University (UFRJ),
an inter-institutional academic research organization
created in the year 2000.
The Program’s merit lies precisely in the bringing
together of different scientific research groups, accord-
underway. There are groups involved in the study of the
ble chemotherapies, in the phenomenon of resistance to
multiple drugs, in the functional mechanisms relating to
the migration of metastatic cells, and in the relationship
between tumors and their milieu, among others.
To inform society about the research conducted, the
ing to its technical research director, Adalberto Vieyra:
Oncobiology Program also has a Disclosure Nucleus, which
ogy Program to advances in fighting cancer is the bring-
dissemination of knowledge in the area of cancer.
“One of the major contributions of the UFRJ Oncobioling together of 300 researchers from different fields of
conducts surveys, produces material and discloses it for the
Since 2005, the Cancer Foundation has invested about
knowledge from the life sciences in integrated projects
R$ 2 million in the Oncobiology Program. Most of this
Scientist Vivian Rumjanek, who idealized and orga-
Among the projects already carried out is construction of
and with increasing translational interaction.”
nized the UFRJ Oncobiology Program, explains that, put-
ting things simply, traditional research can be defined as
the transposition of what is known in the basic area for
funding has been applied in research scholarships.
an auditorium used for courses, lectures and symposia at
the UFRJ Health Sciences Center.
The Scientific Disclosure Nucleus has been awarded
studies in humans, creating a new area of clinical scien-
R$ 122 thousand since 2005, and R$ 402 thousand was
transposed to clinical practice. This transposition is not
were awarded the Vivi Nabuco, Leopoldo de Meis and
tific knowledge. Even so, such knowledge needs to be
easy and has been the motive for discussions at different
earmarked in the same period for doctoral students who
Cancer Foundation scholarships.
21
2012 ANNUAL REPORT
CANCER FOUNDATION
RESEARCH »
INNOVATION
AND ACCESS
In the area of clinical research at
According to Dr. Ferreira, this ori-
National Cancer Institute of Bra-
entation is important especially in
commencement of activities and the
are molecular alterations that charac-
zil (INCA), 2012 was marked by the
guidance of projects of the National
Network for Cancer Clinical Research
and the National Network for Devel-
opment of Cancer Pharmaceuticals
(Redefac). The Cancer Foundation is
the link for administration and application of private funds for development of both.
“The creation of these networks
and the bridge between them evidences that we want to conduct lead-
ing-edge research and, at the same
time, make it possible for the popu-
the case of lung cancer, since there
terize sub-groups of patients. Some
patients have a determined molecular alteration, others have another.
Parallel to this, medicines are being
developed that will be active against
“alteration A” or against “alteration
B”. “They are effective and safe medi-
also a very important year, as it marked
patients who have the determined al-
functioning and the beginning of the
only makes sense for make them for
teration. This is what we call ‘personalized medicine’”, he states.
Based on these results, it is in the
interest of the Ministry of Health
mean enhancing quality of life and
technologies, as long as the size of
getting one’s second wind. In short,
we see clinical research as a vector
of innovation and access,” explains
In relation to the Redefac, 2012 was
cines, but they cost a great deal. It
lation to access new technologies
and new forms of treatment that
Carlos Gil Ferreira
and INCA to incorporate the new
the Brazilian population to be benefitted can be known.
The two studies underway feature
the commencement of the network’s
phase for prospecting for molecules.
“It is intense work, not just in the
sense of identifying candidate molecules, but also establishing the legal
framework for development of projects
that involve intellectual property and
patents. There has been a lot of debate
with law firms. It has been hard work,
but it is a step that is likewise impor-
INCA’s Clinical Research Coordina-
mixed financing, arising out of a pub-
One example of this approach are
System’s Research Program (PPSUS),
development of a Brazil-Cuba accord
well as sources of support from the
of innovative molecules which have
tor, Dr. Carlos Gil Ferreira.
the two national studies that are part
of the National Network for Cancer
Clinical Research aimed at defining
the genetic profile of the Brazilian pop-
ulation in the case of lung cancer. One
of them involves 2,700 patients and the
other 1,100. The results may guide the
Ministry of Health regarding whether
or not to incorporate new forms of
treatment and new medicines.
22
lic notice put out by the Single Health
the Cancer Foundation and INCA, as
pharmaceutical industry. Some R$
2.5 million is slated to be spent on the
studies in the next three years. “This
was an advance, as the National Network for Cancer Clinical Research was
only launched in 2011 and in 2012 it
already began conducting this type of
study”, Dr. Ferreira comments.
tant,” Dr. Ferreira concludes.
Also in progress within Redefac is
that calls for development in Brazil
already been identified in the Carib-
bean nation. The objective is that
these molecules may be useful in the
treatment of patients with cancer in
Brazil. They will be tested on the Brazilian population within the scope
of the National Network for Cancer
Clinical Research.
RESEARCH »
“THE RESULTS ARE
REACHING THE BED”
youngest members of the National
sorbing new technologies. We have
zilian Academy of Science. One of
of diagnostic methods. In Brazil
Academy of Medicine and the Brathe nation’s leading specialists in
the study of proteins associated with
Difference Prize awarded by Rio’s
cells. Another bottleneck is scale.
the Science & Health category.
How is Brazil in the area of
oncological research?
terms and, indeed, the nation already holds 13th place in the produc-
tion of world knowledge, considering the number of articles published
in indexed periodicals. According to
Prof. Jerson Lima, scientific director
of the Carlos Chagas Foundation for
Support of Research in the State of
Rio de Janeiro (Faperj), this formidable development comes about in
the biomedical and medical areas.
And research in the area of oncology
is one of the most important and de-
ogy has grown a great deal in the past
10 years, the fruit of the investment
of funds made by the Ministries of
Science, Technology and Innovation,
the Ministry of Health, the State
Foundations for Support of Research
(FAP’s), the Cancer Foundation and
other development agencies. None-
We have good chemists working in a
network with biomedical researchers
developing lead compounds that act
up right after patenting and publica-
tion of the process is how to go about
making the scale-up – that is, mov-
ing on from milligrams up to grams
and kilograms – in order to be able to
conduct the clinical tests. As I said,
we need to have multiple partners
to make a giant leap and overcome
these bottlenecks.
research
What do you think of the National
Network for Cancer Clinical
Research and the National
Network for Development of
Cancer Pharmaceuticals (Redefac)?
lenge of how to make public-private
From what I’ve been able to follow,
theless, only more recently have
some results begun to reached ad-
vanced pre-clinical stages and clin-
ics. The biggest problem is that
translational
oncological
is very expensive. We have the chal-
Working in networks is essential.
partnerships to face these costs.
there has been a good advance in
both for prevention and for therapy.
The following is an interview with
Do the results of research work
translate into benefits for those
needing treatment?
the doctor and scientist who has al-
ready had no less than 140 articles
The results are reaching the bed.
published, and yet is also one of the
Without research we would be unable to train doctors capable of ab-
mands huge amounts of resources,
few groups dedicated to tumor stem
on new targets. A problem that crops
Research in oncology and oncobiol-
both in quantitative and qualitative
when compared with world-wide re-
search. One of them is that there are
leading daily newspaper O Globo in
Brazilian science has been growing
we still have gaps in several areas,
neurodegenerative diseases and can-
cer, he received the 2012 Making a
Jerson Lima
had advances in the development
structuring these networks. With-
out doubt Redefac is a good response
to the challenges and bottlenecks
I’ve been talking about. Like all net-
works, its success will depend on the
resources and how they are arranged
in terms of priorities.
23
2012 ANNUAL REPORT
CANCER FOUNDATION
MOBILIZATION »
CONNECTED
CAMPAIGNS
Social networks have been
one of the main platforms
of the Cancer Foundation
to raise the consciousness
of people regarding the
need to adopt healthy
habits – which include a
balanced diet and regular
exercise and exclude
cigarettes and alcohol
– and for fund-raising.
Among the principal
campaigns conducted in
2012 two stand out: one
for the evils of tobacco and
another for general cancer
prevention tips.
In February the Foundation gave a
we also need individual donors. For
campaign of the International Union
actions on Facebook and Twitter – ex-
new direction to the theme of the
Against Cancer (UICC) for the World
Cancer Day. The slogan “Together It’s
Possible” summarizes exactly the institution’s philosophy of pro-actively
working to raise people’s consciousness to the effect that only with the
participation of all will it be possible
for government and civil society orga-
cellent vehicles for raising conscious-
ness regarding healthy habits. Our
objective is to aid people to take preventive measures and have a health-
ier and longer life,” explains Claudia Gomes, the Cancer Foundation’s
Communications Advisor.
To give a new direction to World
nizations to work to reduce the num-
No Tobacco Day (May 31), the Foun-
According to the UICC, every year
on Facebook. The topic Tobacco In-
ber of deaths resulting from cancer.
more than 12.7 million people are di-
agnosed with cancer and 7.6 million
die from the disease. The forecast
is that unless effective actions are
adopted the number of new cases
throughout the world will reach
26 million by 2030, with 17 million
deaths. In Brazil, cancer is already
the second leading cause of death
and the outlook is for another 500
thousand new cases this year.
Many companies have been Foun-
dation held a phrase competition
dustry Interference was related to
the one chosen by the World Health
Organization (WHO). As the interferences of this industry represent a
block to sustainable development in
Brazil, the Ministry of Health adapted its approach and elected to focus
on the damages caused all along the
tobacco production chain, both to
the environment and to the population’s health.
The motto for creation of the phase
dation partners, sponsoring research
was the image of a “devastated forest”
such as the show and race entitled
cigarette butts stuck in the soil. Be-
and major events for mobilization,
With you, for life. “We greatly need
the sponsorship of companies, but
24
this reason, we have reinforced our
in which the “trees” cut down were
sides enjoying and sharing, web suffers pitched in with phrases and voted
ARTICLES REINFORCE FIGHT
AGAINST TOBACCO USE
Fighting tobacco use is a historical banner of the Cancer Foundation. Brazil has become an international benchmark for
the measures it has adopted to restrict cigarette advertising,
among other actions, and we have earned the recognition of the
on the ones they liked the best. The
winner was Rafael Coelho, with the
slogan “Plant a healthy future. Cut
cigarettes from your life”. He received
a neck band with a silver pendant in
the shape of the Foundation’s logo,
granted by the Ganish jewelry chain.
World Health Organization (WHO) and the International Union
Against Cancer (UICC) for our advances. There has been a marked
drop in the number of smokers in Brazil – in 1989 over one third
(34.8%) of Brazilians smoked, but by 2011 the percentage had
dropped to 14.8%. And this led to an unprecedented situation
in the country: the number of former smokers is now greater
than the number of smokers! But the struggle does not abate.
Parallel to the campaigns on the social networks, the Chair-
Brazil’s National Fight Tobacco
man of the Foundation’s Board of Trustees, Marcos Moraes,
paign during the month of August on
gust, the Estado de Minas newspaper published “The Burden of
Day, August 29, motivated a camFacebook and Twitter, with material
alerting web surfers to the diseases
caused both by the direct use of tobacco and by exposure to the smoke of
others, passive smoking. Moreover,
the Foundation also sought to stimu-
late public participation, asking ques-
called attention to the issue with publication of articles. In AuTobacco Use for Brazil”, in which Dr. Moraes pointed out that to-
bacco use does not just cause damages to health, but also leads to
economic losses for the nation. He cited a study indicating that
the diseases caused by tobacco in Brazil cost the country around
$20 billion, and caused 130 thousand deaths in 2008 – the year
data was gathered for the study.
“Even though throughout the world laws have gotten stron-
tions and giving tips on how to stop
ger against tobacco use, the tobacco industry acts on the out-
Ten posts were published, and
engaging in institutional advertising based on actions masked
smoking or encourage a friend to quit.
they were seen by 136 thousand people. The one with the greatest viral
reach – i.e. the one that spread the
skirts, justifying their business based on the jobs created and
as sustainable. Cigarettes kill people. This will never be sustainable,” the oncologist wrote.
Prior to this, in June, on the occasion of Rio+20, the Gazeta
most – was the composition of a ciga-
do Povo newspaper in the southern state of Paraná published
campaign with tremendous interac-
which Dr. Moraes pointed out that the United Nations Confer-
rette, with 1,614 hits. “It was our first
tivity with the public. Besides being
related, the two issues, tobacco use
and sustainability, were mightily
appealing to the web surfers,” stated
Claudia Gomes.
the article “The unsustainable social weight of cigarettes, in
ence should include on its agenda and record the fact that pro-
duction and consumption of tobacco products do not combine
with sustainability. Both articles were reproduced in several
other newspapers and magazines and can be read in full on the
Cancer Foundation’s web site (www.cancer.org.br).
25
2012 ANNUAL REPORT
CANCER FOUNDATION
MOBILIZATION »
RACING FOR A
WORTHY CAUSE
A team of winners participated in the “IV Race &
Walk With you, for life”. Organized by the Cancer Foundation, the event brought together two
run. He distances for the hike and race were 10
km and 6 km, respectively.
Brazilian Olympic yachting gold medalist,
thousand participants in December on the ex-
Lars Grael, participated in the countdown for the
day) of the Flamengo Bayside Park, by the shores
of the fact that donating bone marrow is a ges-
pressway (closed to motorized vehicles on Sun-
of Guanabara Bay in front of the Sugarloaf Moun-
tain in Rio de Janeiro, opening the National Bone
Marrow Donation Week. A total of 234 new do-
nors were registered and the public was able to
take advantage of the donation process in tents
set up by partners such as INCA, the Hemorio
blood bank service and Bradesco Saúde (a major
health care corporation).
start. “Our population is increasingly conscious
ture that can save lives,” he stressed.His wife,
Renata Grael, participated in the race for the first
time, thinking about a friend: “She is very be-
loved and is battling against the disease. At times
I just wanted to hike, but I wound up racing on
her behalf. After all, it’s a race against cancer,”
she recalled after completing the 6-km race.
The tent of Bradesco Saúde, event sponsor
The Hemorio tent registered the new donors
for the third time, brought together massage
“In almost four hours, we got all these new do-
composition. Besides the insurance giant, the
and updated the data on those already registered.
nors! Brazilians are very sharing when it comes
to showing solidarity”, enthused the institute’s
coordinator for external bone marrow campaigns, Regina Lacerda. A partner of Hemorio,
the Rio de Janeiro State University Histocompat-
ibility and Cryopreservation Laboratory (HLAUerj) brought employees together in a team to
26
therapists who used equipment to analyze body
Outback steakhouse chain, the firm CEI, the
Foundation for Healthcare Scientific & Technological Development (Fiotec) and HLA-Uerj
sponsored the IV Race & Walk With you, for life,
which also counted on the support of INCA.
The Chairman of the Cancer Foundation’s
Board of Trustees, Marcos Moraes, encour-
Rosângela Mendonça and Claudia Martins: two winners
aged donation by awarding trophies to the
winders. “We already have almost three million donors registered and we are always concerned with keeping them loyal, staying in
contact with donors, in order to facilitate the
transplant process in case compatibility is encountered,” he explained.
Among the runners was 34-year-old Claudia
Martins, who received a marrow transplant
when she was 14 and has honored all editions of
the race with her participation, and Rosângela
Mendonça, 52, who participated in the previous
year’s edition even though she was still undergoing chemotherapy for breast cancer and returned for the 2012 edition.
“Last year, when I participated I was still
bald and didn’t know what would happen. I had
seven months of chemotherapy and this year
I had a mastectomy in May. I always kept asking myself if I would be able to participate in
other editions of this race. Being here and rac-
ing again is wonderful,” Rosâqngela exclaimed
after running the six kilometers of the race in 47
minutes and 20 seconds.
27
2012 ANNUAL
relatório
anual
REPORT
2012
CANCER FOUNDATION
fundação
do Câncer
28
At the top, clockwise from the left: cast
of the show, Rodrigo Lombardi, Carlinhos
de Jesus and Fred Mayrink, Taryn
Szpilman, Otaviano Costa and Flávia
Alessandra, and Tiago Abravanel.
To the right: Mariana Rios
MOBILIZATION »
SOLIDARITY
THAT ENCHANTS
It seemed like the shooting of a Brazilian soap
ees, Marcos Moraes, who thanked the public
gether on stage, Alessandra Maestrini, Mariana
port in the mobilization of society around the
opera and the sight was truly one to behold. ToRios, Marina Elali, Rodrigo Lombardi, Otaviano
Costa, Taryn Szpilman and Tiago Abravanel put
for their presence and the artists for their supfight against cancer.
Fred Mayrink was the first to perform a num-
on the benefit show “With you, for life”. The
ber and he belted out the famous tango “El día
cer Foundation took place in September at the
accompanied by the Rio Jazz Orchestra, and
fourth edition of the event promoted by the CanViva Rio music hall near the Modern Art Museum in downtown Rio de Janeiro.
The spectacle created by director Fred May-
rink this time brought together tangos, bo-
leros and flamencos, after paying homage to
Frank Sinatra (200), Brazilian Popular Mu-
que me queiras” (The day you say you love me),
with dancing by Carlinhos de Jesus and his part-
ner Vanessa. The flamenco company Fátima
Carretero was also on hand during “Granada”.
A newcomer to the show, Tiago Abravanel, sang
the tango “Le mentira” (The lie).
A presence at all the editions of “With you, for
sic – “MPB” (2010) and Tom Jobim (2011). The
life”, actress Alessandra Maestrini sang “Tango
Alessandra, who dedicated the show to Hebe
para Málaga” (Tango for Malaga), accompanied
lovely presenter of the event was actress Flávia
Camargo, famed Brazilian TV talk show host-
ess who died just the day before from cancer.
During the opening, she called to the stage the
Chairman of the Foundation’s Board of Trust-
para Tereza” (Tango for Theresa) and “Tango
by guitarist Fábio Nin. “It’s always emotional to
participate in the event, which each year brings
together more people; it’s a very special moment”, emphasized Alessandra.
29
2012 ANNUAL REPORT
CANCER FOUNDATION
SOLIDARITY »
DONATING
MADE EASIER
In 2012 the Cancer Foundation refor-
Among these donors are those
In April, 68-year-old Manoel
mulated and enhanced the mecha-
who make regular and occasional
Carnaúba Correia de Souza turned
web site, launching an application for
queath donations in their will. All
tendent a check in the amount of
nism for making donations via our
contributions through Facebook and
put into operation the CRM (Customer
Relationship Management) tool that
permits better management of its
relationships with donors. The nov-
elties helped increase the number of
donations from individuals identified
in the period. The number of donors
rose from 1,620 in 2011 to 2,323 in 2012.
donations, as well as those who becontributions have been more than
welcome and are equally important
for the Cancer Foundation, irrespec-
tive of the amounts. Owing to the
lack of space in this annual report to
nominally thank each and every do-
nor, we will present some examples
of solidarity to the anti-cancer cause,
as an expression of our recognition.
over to the institution’s superinR$ 55,624.44, in memory of Maria
da Conceição Bernardes Eugênio,
who did at the age of 83. She had
worked for many years for his family and wanted her life savings to
be divided equally and donated to
the Viva Cazuza foundation (which
battles AIDS and is named in honor of the famed Brazilian singer
LESS TAX CAN FACILITATE AID
Law No. 12715/12, signed on September 17, 2012, calls
at the beginning of April 2012, upon disclosure of Provi-
make donations related to the prevention of and fight
information, research, diagnosis, treatment, palliative
for tax incentives for individuals and companies who
against cancer. Regulated in April of 2013, it resulted
from the conversion of Provisory Measure No. 563,
sory Measure No. 563, projects related to cancer-related
care and rehabilitation are eligible for such benefits.
The law is the result of a suggestion that the Chair-
which created the National Program for Oncological
man of the Board of Trustees of the Cancer Foundation,
porting Attention to Health and Handicapped People
Institute (Icesp) and the Brazilian Association of Philan-
Attention (Pronon) and the National Program for Sup(Pronas/PDC), among other measures.
Based on the announcement made by the government
30
Marcos Moraes, and directors of the São Paulo Cancer
thropic Anti-Cancer Institutions (Abifcc) made to President Dilma Roussef in 2011.
who died of that dreaded disease)
and the Cancer Foundation.
Retired engineer Fernando Altschul
likewise sought out the Foundation on behalf of his sister, Elizabeth, who struggled against breast
cancer for nine years. She was a
monthly donor to the institution
and, after her death, the family
put on a garage sale of her belong-
ings, raising R$ 22,535.00, which
all went to the Foundation.
In the case of retired architect Ná-
dia Regina Nunes, when she turned
60 she requested her friends that in-
stead of presents they should make
donations
to
three
institutions,
among them the Cancer Foundation,
which received R$ 1,260.00. And
29-year-old engineer Thais Chavs organized a beneficiary bazaar at her
home, offering new and semi-new
clothes to friends i n exchange for do-
nations. She wound up taking in and
donating to the Foundation the same
Nádia Regina Nunes (in white): donations instead of presnts
“
All contributions have been
more than welcome and are
equally important for the
Cancer Foundation.
amount as Nadia.
HOW TO DONATE
Whoever wishes to contribute to actions for preventing and fighting against cancer can do so directly through the
Foundation’s web site (www.cancer.org.br), by debiting their account or via credit card. For those wishing to make
donations through a bank deposit, the Foundation has the following accounts:
Banco Bradesco
Branch: 1791
current account: 24.134-2
Banco do Brasil
Branch: 2234-9
current account: 204.783-7
Banco Itaú
Branch: 0541
current account 25.450-4
31
2012 ANNUAL REPORT
CANCER FOUNDATION
Daniel Azulay between professor Rosane M. Santos (right) and aid Izabel Christina M. de Oliveira in workshop with children at INCA
SOLIDARITY »
FOCUS ON CHILDREN
AND YOUTHS
With the improvement in the results of treating cancer in infants and youths, the rate of
cure has been gradually increasing. At present, 80% of children and youths can be cured
if diagnosed early and treated at specialized centers.
32
Pre-start assembly promoted by students of the American School of Rio de Janeiro
Even so, cancer among infants and youths re-
for children and adolescents with cancer and
age bracket in Brazil. The latest information
greater participation in Brazilian and interna-
mains an important cause of death in the 1-19
available shows that in the year 2009 deaths
from neoplasms in this bracket were among
the 10 primary causes of death. As from the
age of 5, death from cancer corresponds to the
their families. It has also been possible to have
tional multi-institutional cooperative clinical
studies, which has driven progress in treating
cancer among children all over the world.
INCA’s Pediatrict Ward has a specialized
leading cause of death by disease among both
multi-disciplinary team that is qualified and
neighborhood of 11,530 cases of cancer in chil-
with cancer, the most frequent forms of which
boys and girls. For 2012, estimates are in the
dren and adolescents.
INCA’s Pediatric Oncology Ward, directed
by Dr. Sima Ferman, is responsible for han-
trained in handling children and adolescents
are leukemia, tumors of the central nervous
system and lymphomas.
Most treatments are carried out in the out-
dling around 70% of all cases of pediatric solid
patient center. Here is an infant chemotherapy
around 15 thousand consultations were carried
In 2012, together with interventionist radiolo-
tumors in the State of Rio de Janeiro. In 2012
out, 1,150 youngsters were interned and 250
new patients were matriculated.
According to Dr. Ferman, with the support
of the Cancer Foundation, it has been possible to implement projects and offer full care
section and a pediatric emergency care service.
gy, super-selective intra-arterial chemotherapy
in Retinoblastoma was implemented, yet another strategy aimed at curing with ocular pres-
ervation. In partnership with Cancer Hospital
IV (C IV), the unit offers palliative home care.
33
2012 ANNUAL REPORT
CANCER FOUNDATION
Students mobilized more than 700 people against cancer
Among the solidarity projects oriented to the
ber, popular children’s TV host Daniel Azulay
Janeiro, a bazaar and benefit tea put on by the
undergoing treatment at INCA. Besides the
by students of the American School of Rio de
members of the city’s Yacht Club, the Happy
McDay (McDia Feliz) campaign and the offer
of Christmas cards in exchange for donations.
The 10th edition of the Walkathon Against
Cancer brought together over 700 people and
managed to raise R$ 31 thousand with the
conducted a drawing workshop with children
playful experience and exercise in creativity
provided to the little ones, the encounter resulted in lovely virtual Christmas cards that
were offer in exchange for R$ 5 donations on
the Foundation’s web site.
Another initiative meriting attention is
sale of T-shirts. The benefit tea at the Rio de
the one put on by the local store Brechô La
Cancer Foundation and INCA brought togeth-
profit for the Cancer Foundation to pass on to
Janeiro Yacht Club, in partnership with the
er 130 peop0le and raisd R$ 8,450. The event
featured a presentation by famed dancer Carlinhos de Jesus.
The pre-sale of tickets for the 2012 McDia Fel-
iz Campaign to supporting employees, suppliers
Luna Mia, which turns over 2% of its monthly
INCA’s Pediatric Ward. The store’s products
can be acquired through the web site www.
lalunamia.com.br, with delivery throughout Brazil.
“These initiatives are important, regard-
and companies brought in no less than over half
less of the amounts raised. And the partici-
diatric Ward. The tickets can be exchanged for
can increasingly upgrade the cure ratio and
a million Reais (R$ 520 thousand) for INCA’s Pesandwiches on the campaign day, August 25. A
total of 49,377 tickets were sold in 2012.
34
Closing out the year at the end of Novem-
INCA Pediatrict Ward is the walkathon put on
pation of everyone is fundamental so that we
quality of life of children stricken by cancer”,
comments Dr. Ferman.
SOLIDARITY »
2012
FINANCIAL
STATEMENTS
SOURCES OF FUNDS
IN MILLIONS OF R$
Revenues from Contracts and Agreements
89,2
Financial Revenues
10,4
Revenues from Donations
8,2
Sundry Revenues
0,1
Grand Total108,0
USES OF FUNDS
IN MILLIONS OF R$
Treatment and Diagnosis
Transplants of Bone Marrow and
Umbilical Cord Blood
32,6
19,7
Infrastructure and Management
15,0
Research Projects
13,1
Foundation Administration6,6
Palliative Care
3,9
Prevention and Vigilance Projects
2,1
Cancer Education and Instruction1,5
Grand Total 94,4
35
2012 ANNUAL REPORT
CANCER FOUNDATION
REPORT OF INDEPENDENT AUDITORS ON THE FINANCIAL STATEMENTS
To
the Board of Trustees, Board of Directors and Oversight Board,
Ary Frauzino Foundation for Cancer Research & Control – Cancer Foundation
Rio de Janeiro – RJ
We have audited the accompanying financial statements
of Fundação Ary Frauzino para Pesquisa e Controle do
Câncer – Fundação do Câncer, comprising the balance
sheet as of December 31, 2012, and the related statements
of surplus, changes in equity and cash flows for the year
then ended, as well as the summary of significant accounting policies and other explanatory information con-
well as evaluating the overall presentation of the financial statements taken as a whole.
We believe that the audit evidence we have obtained
is sufficient and appropriate to provide a basis for our
audit opinion.
Opinion on the financial statements
tained in the notes to the financial statements.
In our opinion, the financial statements referred to in
Management’s responsibility for the financial statements
the financial position of Fundação Ary Frauzino para Pes-
The Foundation’s Management is responsible for the preparation and fair presentation of the financial statements
in accordance with accounting practices adopted in Brazil
and for such internal control as Management determines
is necessary to enable preparation of financial statements
that are free from material misstatement, whether due to
paragraph 1 above present fairly, in all material respects
quisa e Controle do Câncer – Fundação do Câncer as of December 31, 2012 and the results of its operations and its
cash flows for the year then ended, in conformity with
accounting practices adopted in Brazil.
Other Matters
fraud or error.
Audit of amounts for the previous year.
Responsibility of the independent auditors
comparative accounting information relating to the
Our responsibility is to express an opinion on these fi-
nancial statements based on our audit. We conducted
our audit in accordance with Brazilian and International
Standards on Auditing. Those standards that we comply
with ethical requirements and plan and perform the au-
dit to obtain reasonable assurance about whether the financial statements are free from material misstatement.
The accompanying financial statements also include
balance sheet and results for the year ended December
31, 2011, obtained from the financial statements for
the year ended December 31, 2011. The audit of the financial statements as of December 31, 2011 were conducted by other independent auditors who issued a report on
March 26, 2012, which did not contain any modification.
An audit involves performing procedures to obtain
audit evidence about the amounts and disclosures in the
Rio de Janeiro, April 12, 2013
financial statements. The procedures selected depend on
(Free English Version June 17, 2013)
the judgment of the auditors, including the assessment
of the risks of material misstatement of the financial
statements, whether due to fraud or error. In making
those risk assessments, the auditors consider the inter-
nal control relevant to the Foundation’s preparation and
fair presentation of the financial statements in order to
design audit procedures that are appropriate in the circumstances, but not for the purpose of expressing an
opinion on the effectiveness of the Foundation’s internal
control. An audit also includes evaluating the appropriateness of accounting policies used and the reasonableness of accounting estimates made by Management, as
36
BDO RCS Auditores Independentes SS
CRC 2 SP 013846/O-1 – S - RJ
Julian Clemente
Accountant registered with the São Paulo and Rio de Janeiro
chapters of the Brazilian Regional Accounting Council under No.
CRC 1 SP 197232/O-6-S-RJ
Cristiano Mendes de Oliveira
Accountant CRC 1 J 078157/O-2
Balance sheets
As of December 31, 2012 and 2011 (IN THOUSANDS OF REAIS)
ASSETS
2012
Circulante
Cash and banks
Funds earmarked for programs
Equity fund investments
Accounts receivable
Advances
Prepaid expenses
Government agreements
Other credits receivable
Total Current Assets
2011
(RECLASSIFIED)
455
11.593
115.203
21.043
760
131
5.119
195
154.499
83
15.089
100.482
9.392
1.312
142
3.110
240
129.850
3.785
3.785
3.258
27
3.285
29.537
632
33.954
26.741
1.266
31.292
188.453
161.142
Noncurrent assets
Long-term assets:
Deposits in court
Other credits
Property and equipment
Intangible assets
Total Noncurrent Assets
Total assets
LIABILITIES AND EQUITY
2012
Current liabilities
Accounts payable to suppliers
Payroll charges and other obligations payable
Payroll accruals
Other provisions
Government agreements
Projects to be carried out
Other accounts payable
Other obligations payable
Total current liabilities
2011
(Reclassificado)
5.170
1.453
5.152
2.844
5.119
20.456
628
33
40.855
1.479
1.632
5.108
3.110
22.012
177
4
33.522
3.437
1.830
5.267
2.953
1.519
4.472
57.281
65.867
19.183
142.331
49.353
65.867
7.928
123.148
188.453
161.142
Noncurrent liabilities
Provision for contingencies
Deferred revenues
Equity
Foundation equity
Statutory equity fund
Accumulated surplus
Total equity
Total liabilities and equity
37
relatório anual 2012
fundação do Câncer
Statements of surplus
Years ended December 31, 2012 and 2011 (IN THOUSANDS OF REAIS)
2012
Operating revenues
2011
(RECLASSIFIED)
Without restriction
88.996
4.045
511
7.062
364
432
260
9.950
111.620
74.940
1.984
3.855
333
2.127
114
235
419
207
11.216
95.430
(57.802)
(1.318)
(8.069)
(1.666)
(15.256)
(7.779)
(547)
(92.437)
(51.420)
(1.081)
(6.195)
(2.228)
(16.314)
(10.264)
(87.502)
19.183
7.928
Other comprehensive income
2012
19.183
-
2011
7.928
-
Total comprehensive income for the year
19.183
7.928
Service revenues
Provision for cuts in accounts receivable
Research contracts
Courses and seminars
Donations
Equity donations
Sponsorships
Royalties
Other revenues
Net financial income
Operating expenses
Assistance
Education
Research
Prevention and mobilization
Institutional and human development
Administration
Other operating expenses
Surplus for the year
Statements of comprehensive income
Years ended December 31, 2012 and 2011 (IN THOUSANDS OF REAIS)
Surplus for the year from continuing operations
38
Statement of changes in equity
Years ended December 31, 2012 and 2011
At December 31, 2010
Absorption of 2010 surplus
Surplus for the year
At December 31, 2011
(IN THOUSANDS OF REAIS)
EQUITY
STATUTORY
EQUITY FUND
ACCUMULATED
SURPLUS(DEFICIT)
Total
47.373
1.980
49.353
65.867
65.867
1.980
(1.980)
7.928
7.928
115.220
7.928
123.148
7.928
-
(7.928)
57.281
65.867
19.183
19.183
19.183
142.331
Absorption of 2011 surplus
Surplus for the year
At December 31, 2012
Statements of cash flows
Years ended December 31, 2012 and 2011 (IN THOUSANDS OF REAIS)
2012
Cash flows from operating activities
Surplus for the year
2011
(Reclassificado)
19.183
7.928
(1.372)
547
2.555
(11.651)
552
11
(332)
510
(2)
(455)
(521)
3.691
(179)
44
(1.556)
484
311
3.324
12.934
(2.900)
(103)
(1.285)
(2.575)
322
1.519
(343)
4.773
(3.993)
2.656
(1.337)
11.597
(3.200)
2.418
(782)
3.991
115.654
127.251
11.597
111.663
115.654
3.991
Adjustments to reconcile results for the year to funds
provided by operating activities:
Depreciation and amortization
Write-off of property and equipment
Decrease (increase) in assets:
Accounts receivable
Advances
Prepaid expenses
Other credits receivable
Increase (decrease) in liabilities:
Accounts payable to suppliers
Taxes and other obligations payable
Payroll accruals
Projects to be carried out
Provision for contingencies
Deferred income
Other obligations payable
Net funds provided by operating activities
Cash flows from investing activities
Acquisition of property and equipment
Write-off of property and equipment from projects
Net funds used in investing activities
Increase in cash and cash equivalents
Cash and cash equivalents at beginning of year
Cash and cash equivalents at end of year
Increase in cash and cash equivalents
The notes to the financial statements are an integral part thereof and are available to interested parties in the
Portuguese original at the Cancer Foundation’s website www.cancer.org.br
Adriana Cascareja Soares – Accountant registered with the Rio de Janeiro Chapter of the Brazilian Regional
Accounting Council under No. CRC-RJ 078797/O-0
39
relatório anual 2012
fundação do Câncer
40
PROJECT PARTNERS
Associação Pró-Vita
zeneca do Brasil Ltda.
Associação Vencer
Astellas Pharma/PRA
Social (BNDES)
Bristol-Myers SQUIBB Brasil S.A.
Cephalon Inc.
Cobre Bem Tecnologia
Farmacêutica Ltda.
ment
Daiich Sankyo Pharma Develop-
Escola Americana do Rio de Janeiro (EARJ)
Financiadora de Estudos e Projetos (FINEP)
Glaxosmithkline Brasil Ltda.
cas Oncologia
Hospital Albert Einstein
Engineering and Biotechnology (ICGEB)
cional de Câncer (INCA)
Morphotek Inc.
of Health (NCI-NIH)
International Centre for Genetic
ImClone Systems
Instituto Na-
Intrials/Eurofarma
Merck Sharp & Dohme Farmacêutica
National Cancer Institute at the National Institute
Nestlé
national Pesquisas Clínicas Ltda.
Research Associates Ltda.
Novartis Biociências S. A.
Laboratórios Pfizer
Parexel Inter-
Pharmaceutical
PR&D Biotech / Fundação Buntanan
Roche Químicos Farmacêuticos Ltda.
tro S.A.
Fundo Nacional de Saúde
Grupo Lat. Amer. Invest. Clíni-
Instituto Ronald Mc Donald
Janssen - Cilag Farmacêutica Ltda.
Ltda
Bristol-Myers SQUIBB
Cancer International Research Group (Cirg/Roche)
Eli Lilly do Brasil Ltda.
(FNS/MS)
Astra-
Banco Nacional de Desenvolvimento Econômico e
Quintiles Brasil Ltda.
Prod.
Produtos Hospitalares Dist. do Cen-
Roche Químicos e Farmacêuticos S.A.
The International Union Against Tuberculosis and Lung Disease Bloomberg/
Union
Sanofi-Aventis
Vical Incorporated
Worldwide Clinical Research Monitoramento
Wilex AG/PPD Development
EVENT PARTNERS
ABC Turismo
S.A.
Aliança de Controle do Tabagismo (ACT)
Bradesco Saúde
Comércio Exportação e Importação de Materiais Médicos Ltda. (CEI)
Fundação para o Desenvolvimento Científico e Tecnológico em Saúde (Fio-
tec)
Laboratório de Histocompatibilidade e Criopreservação (HLA-UERJ)
Iate Clube do Rio de Janeiro
Isabela Capeto
ONCOMED – Clínica Oncológica Ltda.
rante Dom Cavalcante
Lapa 40o Sinuca e Gafieira
Outback Steakhouse
Restaurante Fran Mourão
Restau-
41
relatório anual 2012
fundação do Câncer
ARY FRAUZINO FOUNDATION
FOR CANCER RESEARCH & CONTROL
BOARD OF TRUSTEES
Chairman
Editorial Coordination
Marcos Fernando de Oliveira Moraes
SPS Comunicação
Board Members
Graphic Design
Antenor de Barros Leal
Inventum Design
Carlos Mariani Bittencourt
Photos
Joaquim José do Amaral Castellões
Divulgação / Secretaria de Estado de Saúde
Arminio Fraga Neto
Ivan Ferreira Garcia
Cesar Duarte
José Ermírio de Moraes Neto
Gianne Carvalho
Luiz Antonio Santini Rodrigues da Silva
Luiz Felippe de Queirós Mattoso
Maria do Carmo Nabuco de Almeida Braga
Roberto Pontes Dias
Kadeh Ferreira
José Antônio Lopes / INCA
Luciana Lopes / Faperj
Stock.xchng
BOARD OF DIRECTORS
General Coordination
President
Cancer Foundation Marketing
Peter Byrd Rodenbeck
and Communications Advisory Staff
Vice-president
English Version
Luiz Fernando Salgado Candiota
Draft Free English Version: Tony Zineski –
Technical Administrative Director
Amaury de Azevedo
Treasurer
Sérgio Tabone
Secretary
Edgar Flexa Ribeiro
OVERSIGHT BOARD
Luiz Figueiredo Mathias
José Humberto Simões Corrêa
José Kogut
José Mauro Lorga
ADMINISTRATION
Executive Director
Celso Ruggiero
IC - Intercontinental Communication
www.cancer.org.br
Rua dos Inválidos, 212 - 8th floor
20231-048 – Rio de Janeiro – RJ– RJ/BRAZIL
To donate, access:
www.cancer.org.br/doe
Phone + 55 21 2157-4600
Fax + 55 21 2157-4630
www.cancer.org.br
www.twitter.com/fdocancer
www.facebook.com/fundacaodocancer