DO WE DARE TO BE DIFFERENT Igor Švab MY AIMS • At the end of this presentation, you will: – Remember your dreams – Understand why you are different – Value your importance – Be aware of the challenges we are facing – Think differently about your competences – Know how to change the world CONTENT • • • • • • • • The good old times The unexpected problems in practice The concepts we use in family medicine The scientific evidence of our importance A short assessment of the current situation What have we almost forgotten What are our skills Conclusion and a proposal ACKNOWLEDGEMENTS Hippocrates Marcel Proust Juan Gervas Chris Dowrick Larry Green Richard Horton Barbara Starfield Cecil Helman Moira Stewart Trish Greenhalgh James Willis Iona Heath Charlie Brown William Ventres Niccolo Macchiavelli • • • • Zalika Klemenc Ketiš Davorina Petek Josip Car Janko Kersnik THE GOOD OLD DAYS OUR DREAMS • To help people • To be important • To change the world for the better THE HARD REALITY OF MEDICAL SCHOOL THE ART AND SCIENCE OF MEDICINE Correct is to recognize what diseases are and whence they come; which are long and which are short; which are mortal and which are not; which are in the process of changing into others; which are increasing and which are diminishing; which are major and which are minor; to treat the diseases that can be treated, but to recognize the ones that cannot be, and to know why they cannot be; by treating patients with the former, to give them the benefit of treatment as far as it is possible. Hippocrates THE PARADIGM • Medicine is performed in a world of hard reality. • Everything can be measured and classified. • Patient care is based on clinical reasoning, which is an intellectual exercise one can perform if one knows the facts and the logic. PROCESS OF CARE • • • • • The patient gets ill Goes to a doctor Is examined Receives treatment Gets well THE ROLE OF THE DOCTOR • To be a detective that discovers the reasons for poorly defined problems. • To discover the correct diagnosis, the correct agent that is causing the disease. 11 A SELECTION OF PATIENTS THE DIFFERENCES IN PRACTICE FIRST LESSONS • You never quite know who or what will walk through your door next. • Textbook cases are exceptions to the rule. • Some problems are not biomedical. A 82-year old lady who has remained alone after her husband has died. She has many health problems, most of them will never been cured. She comes to practice regulary and is very grateful for my time, because she rarely has a chance to have someone listen patiently to her. A 75-year old alcoholic who came for his last visit two years ago when his wife, who was taking care of him, was still alive. He arrives, asking for a repeat prescription. He is dirty and smelling of alcohol. A 42-year old lady with low back pain, hypertension and obesity. It is impossible for her to lose any weight She has seen many different specialists and has done a lot of tests She wants another appointment for a specialist for which I know will not help her. A 76-year old patient with terminal phase of prostate cancer He refuses to talk about his disease, but I know he is aware what is the matter with him His family is urging me not to tell him he has cancer because they are convinced that this will be very bad for him. A 55- year old diabetic construction worker who can not afford healthy food I am recommending. He has found out that he has no health insurance while coming for a routine consultation, which means that I should charge him my consultation. DIFFERENCES AND SKILLS WE HAD TO ACQUIRE COMMUNICATION …among the crowd of gestures and speeches and other little incidents which go to make up a conversation, it is inevitable that we should pass (without noticing anything that arouses our interest) by those that hide a truth for which our suspicions are blindly searching, whereas we stop to examine others beneath which nothing lies concealed. Marcel Proust: Swann’s world NAVIGATING THE MAZE For the doctor For the patient ACCEPTING PATIENT PREFERENCES • Life is not "the supreme good." • Sometimes life is worse than death. Gervas J, BMJ listserver discussion, april 2013 FOCUS ON HEALTH • We have to encourage our patients to look around and discover places where they can smile and laugh, where life can be rewarding and inspirational. Dowrick C: http://wellbecoming.blogspot.com THE ART OF DOING NOTHING • Doing nothing, but having the courage sometimes to wait – to use time as both a diagnostic and and a therapeutic tool – to see what nature does – to wait and see. These are essential skills…that are profoundly important if we are not to fall into the seductive traps of over diagnosis and overtreatment. Heath I. The art of doing nothing. Eur J Gen Pract 2012; 18: 242-246 AN ADDITIONAL REQUIREMENT Hippocrates Charlie Brown Correct is to recognize what diseases are and whence they come; which are long and which are short; which are mortal and which are not; which are in the process of changing into others; which are increasing and which are diminishing; which are major and which are minor; to treat the diseases that can be treated, but to recognize the ones that cannot be, and to know why they cannot be; by treating patients with the former, to give them the benefit of treatment as far as it is possible. • Have you been lying awake worrying? Don't worry...I'm here. The flood waters will recede, the famine will end, the sun will shine tomorrow, and I will always be here to take care of you. DIFFERENT CONCEPTS A DIFFERENT PARADIGM • The patient gets ill • Goes to see a doctor • Not always (prevention) • Doctor prescribes a medication • Other forms of contact • Other professionals • Other treatment options • The patient gets well or dies • Control of chronic disease CONSULTATION Innes, Campion, Griffiths. Complex consultations and the edge of chaos. BJGP 2005 acute and chronic health problems promotes health and wellbeing early undifferentiated stages decision making based on incidence Specific and prevalence problem Comprehensive solving skills approach responsible for health of the community Community orientation care coordination and advocacy longitudinal continuity centred on patient and context Person-centred care Primary care management Holistic approach first contact, open access, all health problems doctor-patient relationship physical, psychological, social, cultural and existential European Definition of Family Medicine: Core Competencies and Characteristics (Wonca 2005) attitude science context © 2004 Swiss College of Primary Care Medicine/ U. Grueninger CONTRIBUTION OF FAMILY MEDICINE • In the hands of GPs, I have watched the patients’ confusion, fear and doubt transform to clarity, relief and assurance…. • With the GP in this role, sick people recover, sick people find relief from suffering, some sick people fear less, and some sick people are filled with hope. Stewart M. Reflections on the doctor-patient relationship: from evidence and experience. British Journal of General practice 2005; 55: 793-801 CRITICISM If primary care has anything at all to do with improving health, then its contribution will be measurable. If not, it will be accepted as the homeopathy of modern medicine. Horton R. Is primary-care research a lost cause? Lancet 2003, 361: 977 MEASURING FAMILY MEDICINE PRIMARY CARE ORIENTED COUNTRIES • Have more equitable resource distributions • Are rated as better by their populations • Have better health • Health costs are lower Starfield and Shi, Policy relevant determinants of health: an international perspective. Health Policy 2002; 60:201-18. van Doorslaer et al, Explaining income-related inequalities in doctor utilisation in Europe Health Econ 2004; 13:629-47. OTHER MEASURES • • • • Accessibility Referral rates Workload Prescribing patterns • Vaccination rates • Clinical targets WHERE ARE WE NOW? SITUATION LOOKS BETTER • We have proven our importance • We are increasingly working according to measurable quality standards and are regularly achieving goals • We are increasigly becoming part of the establishment POLICY SUGGESTIONS World Health Organization. Primary Health Care –Now More than Ever. Geneva, Switzerland, 2008. TEACHING Teaching agenda and other documents Undergraduate teaching of family medicine as innovation in teaching Vocational training as a requirement for independent work in Europe RESEARCH 1. 2. 3. 4. 5. 6. 7. To further develop and evaluate generic models or strategies To encourage comparative research To promote and support longitudinal cohort studies To promote and support intervention studies and randomized controlled trials which take into account broad issues. To encourage research focussing on diagnostic strategies and reasoning To promote studies assessing effectiveness and efficiency in everyday care To develop and validate functional and generic instruments and outcome measures for use in GP/FM research and care. WHAT NEXT? THE NEXT STEP? • The greatest challenge facing contemporary medicine is for it to retain … or regain its humanity, its caritas, without losing its essential foundation in science . Willis, JAR. The sea monster and the whirlpool. Keynote address. Birmingham: Royal College of General Practitioners; 2002. CRITICISM OF MEDICINE • We are experiencing an erosion of medicine’s core values and defining practices by new technologies in the hands of naive rationalists. • Rationalistic assumptions ….perpetuate the myth that, by reducing medicine’s complexity to focused questions about populations, interventions, comparisons and outcomes, we will get rid of its uncertainties and ambiguities. • In fact, you can’t tame complexity without loss of meaning. Greenhalgh T. Why do we always end up here? Evidence- based medicine’s conceptual cul-de-sacs and some off-road alternative routes. J Prim Health Care 2012;4(2):92–97. REDUCTION OF MEANING IN FAMILY MEDICINE • If we concentrate on... – Seeing a lot of patients in a short period of time – Ticking boxes according to protocols – Spending less money – Making patients happy • What do we miss? • By putting too much focus on measurable standards and by forgetting the personal approach we are denying our patients our feelings, our wisdom, our caring, our love, the very values that are needed in a modern world dominated by productivity profit. • Using only rationalistic measures is not enough in explaining quality and contribution of family medicine. SOME DATA • Pay for performance schemes stop improving quality when a target is reached. They also adversely affect continuity of care* • There were no significant changes in quality of care for communication, coordination, and overall satisfaction**. *Campbell SM,Reeves D, Kontopantelis E,Sibbald B, Roland M. Effects of Pay for Performance on the Quality of Primary Care in England. NEJM 2009;361:368-78 **Campbell SM, Kontopantelis E, Reeves D, Valderas JM, Gaehl, E, N Small N, Roland M. Changes in Patient Experiences of Primary Care During Health Service Reforms in England Between 2003 and 2007 Ann Fam Med 2010;8:499-506. THE DANGER OF SIMPLIFICATION • By thinking that only the measurable counts we reduce family medicine to a series of simple measurable procedures which can sometimes be done better by others. • To the disappointment of techno-doctors and bureaucratic managers, family medicine can not be reduced to an industry producing services according to measurable standards at a low cost. THE IMPORTANCE OF CARING • Caring for a fellow being is as important to family medicine as science is. • It can not be measured, but this does not mean that it is not important. • It is complicated, because it involves the involvement of the most complex machine: the person of a doctor • It is not enough for a family doctor to be a detective and provider of services • Much more is needed… WHAT DO WE HAVE TO BE? Adapted from: Ventres W. The Joy of Family Practice. Ann Fam Med May/June 2012 10:264268; 48 THE DETECTIVE • The detective that discovers the reasons for poorly defined problems, that makes sense of an overabundance of information. 49 THE FAITHFUL PARTNER • To be a faithful partner to your patients throughout their life and your professional career, regardless their problems. • To be faithful to the core values of medicine and humanism. THE LOVER • The lover who loves patients regardless their problem, gender, or age, because they are sometimes emotional and because we can discover their unique personalities. • In return, we are greeted with a reciprocal sense of love, a respect, a trust, and an invitation to join them as they make their ways in life, with gratitude when things go well as well as when they do not. 51 THE BELIEVER • The believer who accepts that in encounters with patients, often something inexplicable happens, which can not be explained by strictly biomedical logic. • Who assists when lives are not tidy and manageable or predictable • Who sometimes offers a path amidst the unknown. THE DANCER • The dancer who leads and helps patients and their families to feel a sense of competency in the face of challenge. • The dancer who follows and allows them room to express their fears as well as their strengths. THE ACTOR The actor who plays the roles of: interpreter, guide, diagnostician, advocate, healer By doing this, the actor is supported by what was learned in training. This is the framework for the play, which has developed into something more whole, more complete, and more authentic — the work of a family doctor. CHARACTERISTICS • • • • • • It is difficult It is sometimes dangerous It is often impossible to measure It is often rewarding It is priceless It is what we are WHY DO WE DO IT? • • • • • • To discover like Sherlock Holmes To be faithful like Penelope To love like Romeo and Juliet To have faith like mother Theresa To dance like Fred and Ginger To play like Lawrence Olivier • It is the most difficult and the most beautiful job in the world. CONCLUSION AND A PROPOSAL OUR DREAMS FULFILLED? • To help people • To be important • To change the world for the better MISSION (LARGELY) ACCOMPLISHED • We contribute to people’s health • We are an important discipline in medicine • But this is not enough THE TASK OF CHANGING THE WORLD • Our contribution to changing the world for the better is to be a constant reminder that personal care is essential for every doctor regardless the speciality. • This largely neglected feature of medicine can be best taught and researched in the context of family medicine, because it represents the very essence of the discipline. • By insisting on its importance, we may reduce some of the crisis of modern medicine, driven by technology and money. DO WE DARE TO BE DIFFERENT? • It ought to be remembered that there is nothing more difficult to take in hand, more perilous to conduct, or more uncertain in its success, than to take the lead in the introduction of a new order of things*. *Macchiavelli N. The Prince, 1505